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ranchwife
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Joined: 10 Feb 2005
Posts: 3994
Location: ennis, montana
PostPosted: Sat Mar 12, 2005 3:48 pm    Post subject: Reply with quote
Murgen wrote:
Ranchwife, you're exactly right, makes you think? We all sit on here and talk about the "big" business and money interests within the beef industry, but what about the big business of the industrial industry and medical industries. Might it be that they are spending research dollars by diverting the real causes onto the beef industry?


absolutely!! makes me angry to think that MAYBE the all-powerful drug companies have their hands in things too..hmmmmm...why find a cure for such a devastating disease when we can just keep treating the "symptoms" and pocketing the money....just like AIDS....ya know they have a CURE out there, but can make millions more $ off of the drugs to prolong the agony!! makes ya sick to think about it!! makes ya also wonder "who" is sitting on the cure for CJD...human form or otherwise...unfortunately, it is all about the almighty DOLLAR!!!
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Murgen
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Joined: 12 Feb 2005
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PostPosted: Sat Mar 12, 2005 7:31 pm    Post subject: Reply with quote
Quote:
they don't know how to treat the symptoms and they frankly ignore so called "classic" or "sporadic" CJD.


Reader how would you know if they know how to treat the symptoms?
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Murgen
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PostPosted: Sat Mar 12, 2005 7:36 pm    Post subject: Reply with quote
Reader, sorry that sounded so insensitive, what I meant to say was, if they have a treatment they won't let anybody know until it is of signafigance value to themselves that they will start selling it!
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Mike
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Joined: 10 Feb 2005
Posts: 16951
Location: Montgomery, Al
PostPosted: Sat Mar 12, 2005 7:36 pm    Post subject: Reply with quote
Employing a new methodology, researchers in Israel recently discovered prions in urine, a finding that was previously thought to be improbable. Studies to date have shown that the protein can be found in urine well before symptoms appear and laboratories worldwide have been hastening to validate the discovery. PDL has now confirmed the presence of prions in urine samples of infected animals by using PDL's proprietary reagents. Research is currently underway to adapt the PDL test for analysis of urine samples, which would provide the world's first practical pre-mortem diagnostic test for BSE. Once the test has been proven in cattle, development and completion of a similar test for humans and other animals would be accelerated, ensuring safe blood products, donor tissue and surgical instruments.
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Murgen
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Joined: 12 Feb 2005
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Location: Ontario
PostPosted: Sat Mar 12, 2005 7:54 pm    Post subject: Reply with quote
Reader, I'm not questioning your family's suffering, what I am questioning is the effort to blame this all on eating beef and the determination by some to attack our food safety. When ever you turn around someone is attacking our food for causing cancer, BSE, ecoli, etc.

Then you have certain groups that use this questioning to further their own cause of greed and benefit.

What is interesting is that it's always the life living animals that we question and never the enviornment we live in!
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ranchwife
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Joined: 10 Feb 2005
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Location: ennis, montana
PostPosted: Sun Mar 13, 2005 12:03 am    Post subject: Reply with quote
reader (the Second) wrote:
Murgen wrote:
Quote:
they don't know how to treat the symptoms and they frankly ignore so called "classic" or "sporadic" CJD.


Reader how would you know if they know how to treat the symptoms?


Murgen - my husband died of CJD 12 months ago. I have spent 15 months reading about it hours a day and talking with 400+ U.S. families who lost loved ones to CJD. We have compared notes on treatment. I have read the work of the few U.S. researchers focused on treatment. I have heard the father of the first U.K. teenager treated with Pentosan speak to us families. I have spoken with parents of young sCJD victims treated with quinacrine. I have read about the trials for the 3 or so drugs they have tried to treat it with. I have spoken with 30 TSE experts and another 30 non expert doctors who tried to save my husband's life. I have spent 4 months with hospice doctors treating my husband's symptoms as best as is possible and have heard horror stories of how others were treated when I saw that we were able to give my husband's poor body some relief (his brain was gone by that time).


reader....my most sincere condolences on the loss of your husband...losing a loved one from a "natural" disease is hard enough when you have treatment options that do not work, but your case was different...to stand and watch helplessly must have been hell!! Crying or Very sad I can only imagine....
when i talked of drugs to treat the symptoms and prolong the inevitable, however, i was talking about drugs for AIDS...as a nurse, i have taken care of countless aids victims and seen the incredible number of meds they must take every day just to live for "a little while longer"
may science (and God) send a cure for the horrific disease which took your husband and so many others
again, you have my prayers and condolences!!!

kris
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ranchwife
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Joined: 10 Feb 2005
Posts: 3994
Location: ennis, montana
PostPosted: Sun Mar 13, 2005 1:09 pm    Post subject: Reply with quote
reader (the Second) wrote:
Ranchwife - Again, without going into gorey details, we ended up also prolonging my husband's suffering because we did not know that he had a terminal disease and therefore took extreme measures to save his life when he had pneumonia. I cannot tell you the difference between how he looked after a week in hospice compared to how he looked in the hospital when they were using all sorts of devices and medications -- some totally wrong and harmful. Hospice took a tortured body and soothed him and made him relaxed and comforted. I became a fan of hospice.

There is very little I feel badly about in terms of our decisions but the medical interventions -- the many surgeries and drugs that were tried on my husband were needless and caused him pain and suffering. He was meant to die quickly from pneumonia, not to be tortured and then die slowly. We didn't know his diagnosis because so little is known about CJD in the U.S. and like most of the other families we dragged him from doctor to doctor and hospital to hospital trying to find out what was wrong and to treat him. Actually since he had neurosurgery in the 1970s they should have suspected CJD had they known even a little about how it transmits but I ended up knowing much more about this disease than scores of neurologists, even in the premier teaching hospital in our area.


Crying or Very sad Crying or Very sad please remind me each and every day to be grateful for even the smallest of comforts....when i start in on a pity party of my own, i will take a moment to read this posting and think of the incredible strength you have shown and the pain you have endured....nothing i have gone through can even begin to compare!!
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