Hope this is one of the last updates on Alison:
Happy Sunny Saturday to all!
Alison ended up having her last amphotericin infusion on Monday, Feb. 29th. On Tuesday, she began taking the new antifungal, an oral tablet called posaconazole. Because the fungal infection "treatment" phase is done, she is now in the "maintenance" phase, so that meant the infusion scheduled for Thursday was no longer needed. We were so glad to hear that and head home a day early!
Amphotericin was hard on her kidney, so now we expect to see her kidney function improve. Posaconazole comes with it's own side effects, but doctors are monitoring her lab results to make adjustments to her other medications. The posaconazole dose isn't adjustable and she will need to take it every 8 hours for at least the next 6 months. After chemotherapy, a patient is considered immunocompromised for about 6 months, so it's important to protect Alison from the rhizopus fungus during that time. Alison takes posaconazole at 8am, 4pm, and midnight every day, at least until sometime in August, so I'm guessing she'll need prayers for patience! I know I would!!
Now, about those poll results! Dr. Wagner, Alison's oncologist, has consulted with several colleagues regarding her Burkitt lymphoma/leukemia treatment plan. Some recommend not doing the 6th and final round of chemotherapy, while others suggest doing it using lesser dosages. Dr. Wagner is waiting to hear from a talented team of oncologists in Wisconsin before making her final decision, but she says she is leaning heavily toward NOT doing the last round of chemotherapy!! When all the facts are considered, it may be safest and best for Alison to be done with chemotherapy now! Normally, I would wait for the final word before sharing this with you, but I couldn't stand it!
Please keep us and the medical team in your prayers as we await the "election results"! We are cautiously optimistic!!
With this possibility in mind, the scheduling of post-treatment appointments has begun. This next week, Alison will see Dr. Munson, ENT, so he can take a gander up her nose now that the antifungal "treatment" phase is over. I will see my orthopedic surgeon, as well, as it has been nearly a year since my knee replacement. In two weeks, Alison will see Dr. Sanders, nephrology; Dr. Wagner, oncology; and Dr. Chatterjee, infectious disease. And, our "new" new normal begins... Just took 6 months and 14,000 miles on the car! We are forever grateful to be at this crossroads... Praise the Lord!!
I hope to post "election results" very soon!!!! Thank you for your support!! ;) Love, Colleen