Tough day, but she's tougher
By Colleen Simon — 1 hour ago
Here's hoping you prayer warriors are staying healthy as this flu season begins! I actually feel pretty isolated from it here at the Castle - I'm a little afraid to venture out!! But, I will have to leave the children's hospital at some point in order to get a flu shot... Alison received her flu shot October 5th, so she's covered.
My inner planner is somewhat satisfied again! Nurse practitioner Ashlee provided the if-the-blood-work-is-good-this-should-be-how-it-goes schedule! So, I'll pass it on to you, but if you're not into schedules, you can skip to the next paragraph! Don't worry, I won't be offended!
Oct 12 - she had LP with chemo, rituximab, vincristine and prednisone (prednisone goes all week)
Oct 13 - methotrexate... This one caused the tough day today. It is the only time it's given this week, AND, it's not on the list for round three! She won't miss it any...
Oct 14 - leucovorin, cytoxan, LP with chemo
Oct 15 - cytoxan, rituximab
Oct 16 - cytoxan, LP with chemo (Also, no LP scheduled for next round! Phew!)
Alison will, most likely, stay the weekend here at the Castle to make absolutely certain she's hydrated and doing as well as possible, especially due to the upcoming "Trip of Hope" to Louisville for National FFA Choir and Convention! ("Trip of Hope" is something I just made up - seems appropriate!) Then, labs will be checked a couple times before she leaves for Kentucky. Upon her return, we will stop at the Castle on Nov 1st for labs and wait a short while for the results. If the labs look good, she'll be admitted to start round three on Nov 2nd. If labs show she's not ready, then we'll head home and check labs until they look good to start again. Clear as mud, isn't it?!
The bottom line I learned today is that her chemo is hard-hitting because Burkitt Lymphoma/leukemia grows so quickly. You have to step on the speedy bug, then twist your foot around on top of it for quite awhile to make sure you kill the dead thing, then flush it down the toilet! Her length of treatment, therefore, should be shorter, but also more grueling than treatments for other types of cancers. After round four, I believe, is when scans and tests will be run to see if there are any areas of active lymphoma. Subsequent treatment will be discussed at that time. Please hang in there with us! We need your prayers and hugs!! Thank you!!
Peace be with you!! Colleen